Record patient treatments
Generate outcomes reports
Improve ocular health

ABOUT US

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The Save Sight Registries is one of the most advanced ophthalmic registries in the world, and is a unique platform for tracking eye disease, interventions and patient outcomes. Its sophisticated design delivers real-world evidence on the risks and benefits of current and new treatments for ocular conditions. This information helps clinicians provide safe, cost-effective and evidence-based solutions for vision impairment and avoidable blindness. The Save Sight Registries also promotes international scientific research aimed at developing strategies for reducing the incidence of blindness throughout the world.

The Save Sight Registries is an initiative of the Save Sight Institute, in collaboration with the University of Sydney and Sydney Eye Hospital.

APPROACH

  • We provide clinicians with training and support for using the system
  • Clinicians enter anonymised data on treatments and outcomes collected at patient visits
  • Our software automatically generates graphs that display individual patient journeys
  • Clinicians generate reports that summarise outcomes for their patients and other clinicians’ patients
  • We coordinate and publish analyses of the real-world data captured in the system
  • Clinicians are acknowledged for their contributions, and may be invited to co-author publications that include their data
  • Patients and clinicians benefit from new knowledge gained on a range of ocular conditions
How it works 8cc9ebf6329301f27596821dfc906bd0f3a57149a9b941047d4f93042082cf19

MODULES

Fight Retinal Blindness! – This module captures data on a range of treatments for neovascular age-related macular degeneration (nAMD), choroidal neovascularisation other than nAMD, diabetic retinopathy and retinal vein occlusion
Fight Glaucoma Blindness! – This module focuses on the safety and effectiveness of devices that are used in minimally invasive glaucoma surgery (MIGS), which are designed to reduce or eliminate the need for glaucoma eye drops or invasive surgery
Fight Corneal Blindness! – This module focuses on outcomes of corneal cross-linking – a technique that uses riboflavin and UVA to strengthen the cornea to reduce the progression of keratoconus
Fight Tumour Blindness! – This module collects data on survival and quality of life following treatment of ocular melanoma – a rare form of cancer
Fight Uveitis Blindness! – This module gathers a comprehensive range of quantitative and qualitative data on the treatment of uveitis – a form of inflammation in the eye that has a broad range of causes

FEATURES


Patient graphs – Automatically generated and interactive graphs that display individual patient journeys

Outcomes reports – Reports that allow clinicians to compare their patient outcomes with anonymised data from all other clinicians using the system

Dynamically generated forms – Forms that automatically ask for data that are relevant to the patient’s ocular condition and treatment history

Patient questionnaires – Forms for collecting patient-reported outcome measures using validated questions

Import function – Feature that enables secure transfer of large amounts of data into the Save Sight Registries using csv files

Export function – Feature that enable clinicians to extract and analyse raw data from the system

REQUEST ACCESS

To access the Save Sight Registries, simply complete and submit the form below. We'll then get in contact with you to help you get started with using the system.

If you would like further information about the Save Sight Registries please email ssi.ssr@sydney.edu.au or phone on +61 2 9382 7304.

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